July News: Tick Testing

Missing information:

Recently I was writing to a friend about the proper way to remove a tick. It came to my attention when researching all the different sites with this information one important piece was missing.

Proper disposal of the tick.

The best way to handle this is by using a snack Ziploc bag, put a small piece of wet paper towel, {only use water}, in the Ziploc bag then put your name, the date and the town and state you are in on the bag. Put the tick in the bag, seal it and send to a tick testing site.

   

There are several sites offering tick testing. Some are free and some are not. Various Universities are doing research on what diseases are carried by ticks and what species of ticks we are seeing in our area. This research is very important.  It will help patients and the doctors they go to have an idea of what they are dealing with.

Also, with the number of ticks we have now, doctors are not equipped to check such a high volume of ticks in their offices. It is better for a patient to show up with a document stating what the tick carried to save time on knowing what treatment will be best.

Below are a few of the tick testing sites. I am proud to say my Alma Mater is in there:

Pay Sites:

Tickcheck.com

Tickcheck.Org

https://tickencounter.org/tick_testing

Free Sites: (Claim to be free)

https://spectrumlocalnews.com/nys/central-ny/news/2019/06/27/free-tick-testing

- https://thangamani-lab.com/free-tick-testing

www.ticklab.org

One Lyme group has a good list. I tend not to favor any one group to another as I personally feel they should all be working together.

https://globallymealliance.org/tick-testing-labs/

I hope this helps,

Christina Murphy

Newsletter and welcome:

Hi everyone,

I am just coming back from a fun filled 2 months of education events.

Thank you so much for those of you who signed up for more information. A special thanks to those of you who have been with me along the adventure. Your support and love are what keep me going.

I want to let all of you know how important you are to me. There are so many people unaware of how devastating Lyme disease can be and you are not alone in your experiences. We all have different paths of experience, but we can help each other.

So, the schedule coming up will be like this:

Every second Wednesday of the month, I will be at Dublin Roasters Coffee Shop from 10:00 am – 12:00 pm to have a support circle.

Every third Tuesday of the month I will hold an evening Support Circle at Sacred Space Holistic from 7:00 pm to 9:00 pm.

Quarterly in the year I will have a Navigating Lyme class to help with the lumps and bumps of living with Lyme disease and other co infections. Next class is on August 27,2019, Tuesday evening from 7:00pm to 9:00 pm. This is by reservation only, so call and make your reservations soon.

Starting in August I will be having topics we can discuss in our Circles. I will invite people to share how different modalities of healing can help and have speakers or make or take experiences we can share. If there is any topic you are most interested in, please let me know.

This week I will be taking a step back and doing some healing work for myself. Between doing events, having family events and having other adventures, I need rest. I am not one who usually does this, but as I want all of you to know it is imperative to take good care of yourselves, I live as an example.

In the past few weeks it came to my attention how little people know how this disease affects me. Some of the dearest people in my life have no idea and it puzzles me. Did I not explain the experience correctly? Is my ability to articulate so truly compromised? Is there just no concept because I look so “normal”?

I ask myself,” How can I effectively help others and protect future generations if I cannot get my friends and family to understand the whole picture of this disease and it’s co infections?” Perhaps we will muddle through this together. As a Lyme community and family let’s help each other, partner together and unite to one consolidated effort.

Okay, I must go rest now so I can clean up the table later. Love you guys.

Be good to yourselves,

Christina

May 2019: Lyme Awareness month

Lyme disease Awareness month:

It is very profound that the ribbon for Lyme disease is also the same ribbon for military families. It is also representing two other groups, but this is our month!

I apologize if this is a long newsletter, but there is tons going on this month and I don’t want to forget a thing.

It is a great opportunity for all Lyme patients and their families to find their voice and speak up, educate and advocate for the better treatment for this disease. It is a disease, not a syndrome. A disease which numbers far exceed any disease we have had before this time and yet is getting little or damaging recognition. Our children and all future generations need better care and education. Let’s learn from the past to make a better future.

May is Lyme Awareness month so let’s get rocking! =)

First, remember to use your bug repellent, wear permethrin treated clothes and shoes.

Next, to remove a tick, use needle nose tweezers and slide under the head so you can pull the tick straight up! Put the tick in a Ziploc snack bag that is labelled with your name, date and location. Put a small piece of wet paper towel in and seal it up. Send the bag to either your local health department, (political move), or Tick Check to be analyzed. (they can be found online, and it does cost money).

There are research programs going on in each state to test ticks so look them up online if you want to send your tick in to them. Research data is so important currently so go for it!

After this, get treatment. Be safe. You pay the doctor’s salary so demand the best care.

This part of the newsletter is all the calendar of events for me and others:

First is my calendar: Can Do With Lyme LLC Calendar for 2019

Schedule for 2019

Support Groups 2019:
Sacred Space Holistic Center Evening Support: Every 3rd Tuesday of the month, 7 PM – 8:30 PM.
Dates are: January 15,2019
February 19, 2019
March 19, 1019
April 16, 2019
May 21, 2019
June 18,2019
July 16, 2019
August 20,2019
September 17, 2019
October 15, 2019
November 19, 2019
December 17, 2019

For those unable to attend the evening support groups, I offer an alternative on every second Wednesday of the month at Dublin Roasters Coffee Shop from 10:00 am -12:00pm.


Classes at Sacred Space Holistic Center: Held quarterly through the year on the Fourth Tuesday of months chosen.
January 22, 2019, April 23, 2019, August 27, 2019, November 26, 2019.
Classes are from 7:00 PM – 9:00 PM. Pre-registration is required.

Private classes have been scheduled and one week in July, I will be on the road with The LEAF program.

Events:

April12- 15: Festival of Legends, Apex, NC

May: New Market Green Days: May 11

- May 18, 2019 10:00 am till 5:00 pm. Middletown Rec Council 10th Annual Color Me Spring - Spring Festival Location: Middletown Community Park off Coblenz Rd.

June 8- 10: Bless The Woods, Fairplay MD ( Big Event)

June15, New Market Green days

June 22, Frederick Pride

July: July, 13, New Market Days, New Market MD

July 29 – August1, Education Classes in Salisbury MD and Eastern PA

August: August 10, New Market Green Event

September: September 14, New Market Green Event

Free

Second is everyone else:


Lyme Alive meetings and events (not in chronological order!) **Saturday, May 25th, Lyme Alive is hosting a screening of both award-winning lyme disease documentaries Under Our Skin & Under Our Skin 2: Emergence at Bowman library from 12-4:30pm!** If you have not seen these movies, you need to make plans to be here. If you have seen these movies, you know how eye-opening they can be; please encourage your families and friends to attend. We will be serving light refreshments, etc this day, and will be "boosting" the event on Facebook to increase visibility and to hopefully get more people to attend. More information: https://www.facebook.com/events/320908201902364/ Our Social meeting is Tuesday, May 14th from 1-3pm at the World of Healing (33 S Loudoun St, Winchester VA 22601). Please join us for a light lunch, pot of tea, or simply socialization. More information: https://www.facebook.com/events/679618139136911/ I am also asking for help on Wednesday, May 8th from 12-2pm at the Bowman library (871 Tasker Rd, Stephens City VA 22655) in order to help put together kids' lyme prevention bags. Each bag will contain a brochure, tick ID card, 2 coloring sheets, crayons, and small toy. All materials provided, I'm simply requesting help stuffing bags. (A huge THANK YOU to those that committed to helping within minutes of me asking on facebook!) More info: https://www.facebook.com/events/2175007375954130/ Lyme Alive will have an information booth at the annual Garden Fair, held Mother's Day Weekend at Blandy Farm. The dates are May 11 & 12, and I'm grateful to Deborah and Jason for volunteering to help me here. Lyme Alive will also have an information booth at the Time to Move for Lyme 5K event, hosted by Anytime Fitness at Sherando High School on Sunday, May 19th from 8am-12. I'm grateful to Georgia Bass for bringing this event to my attention yesterday, and to those that are organizing it. If anyone (aside from Jason) would like to volunteer to help at this event, please let me know! More info: https://www.facebook.com/events/2307608079477071/ Other Lyme Events Friday, May 17th is a Lyme Rally in Washington, DC from 9am-??; the plan is to march the halls of Congress in order to demand awareness and recognition of "chronic lyme". A candlelight vigil will follow, and a list of names of deceased lyme warriors will be read aloud. Myself and a couple of others WILL be there - please let me know if you'd like to join us!! We can easily make plans to accommodate anyone that wants to go along! More info: https://www.facebook.com/events/1059089830914569/ Sunday, May 19th is the National Capital Lyme and Associated Disease Society's (NatCapLyme) annual 5K/1K Finish Lyme run. It has a new location this year; 4100 Monument Drive, Fairfax VA 22030. (Yes, I know this is a direct conflict with the local 5K that is being hosted; I will be at the local one in Stephens City.) On Thursday, May 30th, the Loudoun Lyme group is hosting a free Federal Tick-borne Disease Working Group update, held at Belmont Country Club from 7-8:30pm. Dr John Aucott from Johns Hopkins will be there, as will Kristin Honey. So far, we have 4 support group members that are committed to going - please let me know if you'd like to join us. More info: https://www.facebook.com/events/2622787917737402/ TONIGHT, Thursday the 2nd the Warren County Support Group is meeting. More information on that meeting can be found here: https://www.facebook.com/events/2305043389560399/

Well then, I think that is all there is for now. I apologize for the length.

Be well, be safe,

Christina

Changes

I have an announcement to make!

I am now working at Sacred Spaces Holistic Center.

Same building, new name!

On to the newsletter!

This months group topic was Lyme and Sex:

Lyme and Sex:

In dealing with Lyme disease there are too many topics to look at and this one is always on the back burner. It is hard enough to deal with Lyme on a day to day basis with food, activity, or lack thereof, but must we go into this subject too?

Well, yes. In learning Lyme borreliosis is a cousin to Syphilis, the question comes up of whether Lyme is an STD.

In an article from Lymedisease.org from 2014, there was a study done in Carmel CA to see if Lyme could be transmitted sexually. They found this: “all women with Lyme disease tested positive for Borrelia burgdorferi in vaginal secretions, while about half of the men with Lyme disease tested positive for the Lyme spirochete in semen samples. Furthermore, one of the heterosexual couples with Lyme disease showed identical strains of the Lyme spirochete in their genital secretions.” (Reference: The Journal of Investigative Medicine 2014; 62:280-281.)

Microbiologist, Professor Lidia Mattman has studied this topic for many years and has isolated the Lyme bacteria for study in different circumstances and she has found this:” The bacteria live inside urine, breast milk and tears, semen, blood, plasma, and the moisture in the brains and spinal cord. She found Borrelia in tears and explains how easy Borrelia can therefore be transmitted through the hands.

Further, the isolated living Borrelia spirochetes, inter alia, mosquitoes, fleas, mites, semen, urine, blood, plasma and CSF. What she discovered that this bacterium is dangerous because it can survive and spread without cell wall (L shape).

(Because L-forms do not possess cell wall, they are resistant to bèta-lactamantibiotics, such as penicillin. These are antibiotics that act on the cell wall)

Many families are already known for having all members (as with Rosan) suffering from borreliosis, but each of which, prior to the conclusion thereof, contributed another diagnostic label, with the consequent (not full effect) medication. The result being that if one family member has Lyme, the whole family should be treated.” (https://www.lymeepidemie.nl/transfer-lyme-disease/?lang=en)

So what can we do?

First, let’s look at how we prevent getting an STD.

You should:

Use latex condoms every time you have sex. ...bodily or oral.

Avoid sharing towels or underclothing.

Wash before and after intercourse.

Get a vaccination for hepatitis B. ... (good advice).

Get tested for HIV, Lyme and other co infections.

If you have a problem with drug or alcohol abuse, get help. ...

Look into how to have safe sex.

In Essence, use a condom, use materials that cover the tongue,( Yes, there are products out there to use.), go through the motions with clothes on. The best way to not pass any disease on to anyone is abstinence. Back to number 7.

Bad news? Perhaps, but safe is always better than being sick or passing an illness on.
I will send out a second email this month because Thanksgiving is coming and we all want to eat yummy amazing food that will not cause us to herx.
I hope this newsletter will find everyone in good health and on a path to happiness.
Christina

PS Consider that not having sex is the only sure way to prevent STDs.

Moods and Lyme disease

Moods and Lyme disease:

Lyme disease is known to cause a ton of problems.  So, let’s get basic about this: The spirochete is shaped like a cork screw. It travels in a biofilm that can hold thousands of spirochetes. They travel through the body screwing themselves into any and every cell they can all along.

One of the favorite spots is the brain. So, there will be lots of corkscrew holes in the braincells, thousands in fact. This can cause inflammation and a plethora of problems such as neurological issues, cognitive issues and the list goes on.

Here is a quote from an article from Global Lyme Alliance: “I’ve experienced “Lyme brain,” and the symptoms are similar. Throughout my 20-year battle with Lyme and other tick-borne illnesses—eight of which were undiagnosed and untreated—I have wrestled with shortterm memory loss, confusion, brain fog, word repetition, difficulty retrieving vocabulary, and a tendency to mix up words. Other neurological symptoms have included insomnia, hallucinogenic nightmares, migraines, burning extremities and mini seizures.”

Physical presentations of the brain being affected is quite normal and evident by many patients. As for myself, I went from being able to speak foreign languages to barley being able to handle English. My vision has changed, I sometimes have cognitive issues and that makes me frustrated. The information is still in the old bean somewhere, just not available right this moment. Depends on the day.

Is it any surprise emotional issues pop up?

 Well, when a person gets sick they feel awful. When they find out about a diagnosis of something needing treatment for a long time or learns physicians are not agreeing on how to treat or if the disease is serious, there are a myriad of emotions from shock to disbelief to anger to rage to sorrow and in some cases giving up.

Then there are the neurological reactions to the borrelia being in the brain long term as listed below from a site I found.

“Some patients have developed Lyme-related psychiatric symptoms:

  • Psychoses including hallucinations and delusions.

  • Emotional lability: rapid mood swings, episodes of rage, crying, reduced impulse control.

  • Depression.

  • Suicidal thoughts and behavior.

  • Anxiety/Panic attacks.

  • Mood swings that may mimic bipolar disorder (manic-depression).

  • Obsessive-compulsive disorder (OCD).

  • Sleep Disorders.

  • An Attention deficit/hyperactivity disorder (ADD/ADHD)-like syndrome.

  • Autism-like syndrome.

  • Delirium.

  • A progressive dementia.

Patients may also be wrongly diagnosed with hypochondrial and somatoform disorders as well as ME (Myalgic Encephalitis) and CFS (Chronic Fatigue Syndrome), if they are perceived as having medically unexplained symptoms.”

( https://www.lymediseaseaction.org.uk/about-lyme/neurology-psychiatry/)

There are a lot of why’s involved in any conversation about Lyme disease. Some people dismiss it, some people mourn their lost lives and others think people with Lyme are just lazy. I have heard it all. It is no wonder folks have many mood swings with Lyme and it is not just from medical biological problems. It is also caused by the environment of the disease itself. ( I say lack of education in the medical arena, but perhaps it is more than that.)

So, if you ever have had these issues and found fantastic ways of dealing with them, please can you share? There can be handy tools and little practices to overcome these inconveniences daily.

One thing that has helped me hugely is the GPS. When I cannot recognize an area, I pop that baby on and get to where I need to go! It is awesome!  Share with us what you have had to overcome and how you did it. It may help someone else in their journey.

In other news:

We have made it through the summer classes season and have had fantastic response from people at events.  Tank you everyone for all the love. I especially want to thank Sawyer for yet again sponsoring us through this season. Great company!

We are doing two Lyme Circles a month, one in the morning and one in the evening and we do classes at Therapy Box Inc. in Frederick and in Elicott City. Thank you Therapy Box for welcoming me to the family.

I will be doing aroma touch therapy for folks who schedule through Therapy Box as well as Wellness coaching.  I want to thank everyone who comes to the Circles and classes. You are wonderful!

Please be good to yourselves and visit our Circle whenever you can. Next topic will be : " Our favorite Recipes". Bring a recipe to share!

Lots happening...

Hello everyone!

There has been a lot going on lately!

I apologize for not keeping everyone up to date on everything.

June is a busy month starting with Bless The Woods: Thursday, June 7 through Sunday, June 10 2018. Non Stop music and Lyme Education in Fairplay MD at the Woodman's Campgrounds. Come join us.

Next will be Frederick Pride on Saturday, June 23rd at Carroll Creek Linear Park ,Frederick MD.

On Tuesday,July 17th the Navigating Lyme class will be at Therapy Box on Industry Lane from 6 pm - 9 pm. A lot of information and Question and answer time!  Check in and call Therapy Box to save your seat or call them to schedule a consultation! I am a new partner in their offiec so come on over and check it out!

Last thing I want to mention is that no matter what kind of tick or bug that bites you, get checked. Send the ticks in to UMASS in Amherst to get the ticks tested, ( yes, even if they are dog ticks)! Be safe. Be informed!

Much love to you all,

Christina

Busy November

Busy November                     This month has been a month of posting about being thankful and sharing with others on social media. I will say though I have had a real struggle with my emotions over one thing.  I educate people about Lyme disease and I also hawk my wares by asking people if they might want to prevent it. The response I get is 95% the same: “I already know all about Lyme disease!” I admit, I get very agitated when this happens. So, why, I ask are so many people getting it?  What I really want to say is, will you please tell the doctors all you know? We really need your help!  Erm, perhaps not, lol. The truth is no one is really interested in talking about it because it is either too scary or it is embarrassing in this age of information to admit no knowledge of what it is and how you get it. They trust information on the internet to be true and leave it at that.  In the midst of trying to find some way to get places to schedule classes, I found out my Lyme, Bartonella and Babesia is back in rare form. I am back on antibiotics and fighting the fight. Do I give up on trying to educate others, so they will be safe? No! I pull a meeting together to see how my friends and I can get information out there!  We concluded FEAR is the thing we need to overcome. With that in mind, I want to give an antidote I wrote about before for fear.   F orgive: Yourself and others.   E ngage: In communication with someone / others.   A ccept: you are a person with purpose.   R ethink: Your outlook.  This is what helps me. Also, I want to mention on this Wednesday before Thanksgiving how much I appreciate the people who sit with me and work with me at meeting and through all the work of trying to educate people about Lyme disease.  All of you are so amazing and are precious to me. If I could give you the world, I would.  Happy Thanksgiving everyone! Be fearless!  PS Can Do will be at The WinterFest Market! =) See Below!

Busy November

                This month has been a month of posting about being thankful and sharing with others on social media. I will say though I have had a real struggle with my emotions over one thing.

I educate people about Lyme disease and I also hawk my wares by asking people if they might want to prevent it. The response I get is 95% the same: “I already know all about Lyme disease!” I admit, I get very agitated when this happens. So, why, I ask are so many people getting it?

What I really want to say is, will you please tell the doctors all you know? We really need your help!  Erm, perhaps not, lol. The truth is no one is really interested in talking about it because it is either too scary or it is embarrassing in this age of information to admit no knowledge of what it is and how you get it. They trust information on the internet to be true and leave it at that.

In the midst of trying to find some way to get places to schedule classes, I found out my Lyme, Bartonella and Babesia is back in rare form. I am back on antibiotics and fighting the fight. Do I give up on trying to educate others, so they will be safe? No! I pull a meeting together to see how my friends and I can get information out there!

We concluded FEAR is the thing we need to overcome. With that in mind, I want to give an antidote I wrote about before for fear.

Forgive: Yourself and others.

Engage: In communication with someone / others.

Accept: you are a person with purpose.

Rethink: Your outlook.

This is what helps me. Also, I want to mention on this Wednesday before Thanksgiving how much I appreciate the people who sit with me and work with me at meeting and through all the work of trying to educate people about Lyme disease.

All of you are so amazing and are precious to me. If I could give you the world, I would.

Happy Thanksgiving everyone! Be fearless!

PS Can Do will be at The WinterFest Market! =) See Below!

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A Day in the life...

     Part of understanding Lyme disease and it’s co infections is to approach education not just from the science and medical perspective, but from the people affected by the disease.
     Walking through the shoes of the people with Lyme. Going through a day and feeling and seeing what they go through. So, in this spirit I am going write about one of my relapses. Relapses happen from time to time due to stress, not staying on protocol, exposure to mold and many more issues. It can happen to any patient at any time after remission.
     I had made plans to go to a festival. I was so excited because some friends I know do this event and there is a wide variety of people who go there. I also had mistakenly thought it was closer than it was. (I thought it was a town 45 minutes from me versus the town it was which was 2 hours and forty-five minutes away.
     I packed everything even though I was feeling off, I figured I would take my time and ask my husband if we might go together so he will drive.
     Next morning, I woke up with a family of cicadas yelling in my ears, pain screaming through my head and a rash searing my belly with pain and an insatiable itch radiating down to my knees. I crawled out of bed and got downstairs to feed the dogs. I put an oil blend for migraines on my head and back of my neck, pulled myself up by the counter and put a pack of ice on my neck.
     I let the dogs out, moved around holding the walls and pulled out some ready made jello, my med packs and migraine medicine. Put everything on the table, sat down and ate then took my medicines. I messaged my friends to say I will see them after my medicine took effect.
I let the dogs back in and sat loving on them while I waited for the meds to take effect. Soon the buzzing in my ears settled down and the pain in my head eased a bit. My throat became thick and it was hard to swallow because of the medicine but I am accustomed to such things.
     I got up moved towards upstairs walking in crooked directions but I was moving, so I went and got dressed.
     My husband and I had a cup of coffee together as we talked about the day. He pointed out to me I had made a mistake about how far the event was and asked if I felt up to going. At the time, I felt maybe I could so I asked him if we can go to the store to get my dandelion tea as a test run.
We went to the store and as time went on where my clothing touched my rash, my skin was on fire with pain and itching, my head was light and I weaved back and forth while walking and then when sitting I felt like I was still weaving. My husband and I talked about my symptoms and expressed concern. I was going to be head strong because I want to see my friends, I want to hand out my business cards, I want to get my work done, but I noticed how gentle my husband’s words were.
     Common sense won over stubbornness. As I called my friends to tell them I would not make it, tears streamed down my face the sun was beautiful, the breezes amazing and all I felt was physical and mental pain as the itching and burning seared down to my legs. Clearing up the symptoms will take time but the inability to see my friends, enjoy a beautiful day really pissed me off.
     The rest of my day was filled with resting, being with the dogs and family, detoxing and medication. I did get to sit on the front porch for a while and quieted my anger with deep breathing and knowing I will be back up and around to drive my family nuts eventually. (The thought makes me smile).
     And that was my day. Itchy, painful and uncomfortable. As a health coach, I know all the things to do to get better and I apply what I need for my symptoms. The symptoms are ever changing and it takes time to remedy them. As a person, the time it takes to heal properly and the complete faith believing I will is the hardest practice to stick with. If you ever worry about do I practice what I preach, I do. Every day. It is my life.
Wishing you joy and love,
Christina

Tough Topic

First let me tell you the latest events:
July 25, 2017, Tuesday @ 10:00 am
Presentation with Dr. Nancy Fox at Elkridge Elementary School.
July 30, 2017, Sunday 11:00 am - 6:00pm
Pagan Pride Day in Martinsburg WVA at Mason Dixon Historical Park, 79 Buckeye Road, Maidsville, West Virginia .
Tough topic
This morning I am pondering, not lightly, the topic of how Lyme disease changes the lives of couples.
There seems to be many couples who go through many facets of emotional difficulty when one or the other partner get Lyme disease. Not many couples stay together during the healing process. It is a hard road to go on. It definitely tests all facets of a relationship.
There have been discussions about how Lyme disease can be transmitted through sexual contact. (It is also congenital for those thinking about having children). This brings up the difficulties of communicating with your partner about the disease and all the emotional side effects occurring during times of intimacy.
On one hand, it seems basic knowledge to practice safe sex. There are those who did not know they had Lyme and may have infected their partners unknowingly. It is a scary topic boggling the minds of single people and married couples alike. In writing, this I am having a lot of mixed emotions so I figure it is an important topic to deal with.
Let me do this on a personal basis:
When I found out I have Lyme disease I was a bit stunned and had no idea it was communicable. My husband and I are a typical loving couple and carried on our relationship as we always had. We began to talk about things but went through phases and not necessarily at the same time.
It was a bit later I had found out about the nature of the disease.
This was many years after I had my children and been active with my husband. To say I was riddled with guilt, shame and many questions, well, undeniable. What had I done to my family unknowingly? How do I ever get over the possibility I gave this disease to my loved ones? It is devastating.
Here is the good news: They have been tested regularly and have come back negative for Lyme disease. Do I still worry? Everyday. Is it far from my mind?  Nope.
I am learning to cope with all the emotions moment by moment as things come up. I also talk with my husband openly about this subject so understanding and compassion for each other is practiced during our lifelong commitment to each other. Easy? Hell no. Frustrating? Hell yes.
So not only has my drive been messed up by crappy symptoms occurring during this disease, but it has been depleted by the emotional side effects. Crap! I love my husband so much, but how do I go back to being wildly passionate when I don’t feel that way? Will I ever feel beautiful again? Will I have a sex drive again? So many questions.
 It takes time. It takes finding ways to bring myself back from fear and panic and putting myself in my husband’s place. My husband also has told me we have a lot more than sex invested in our marriage. His support is so crucial through this journey.
There is no way to explain how important it is to have someone accept you and just be there. Little everyday things bring joy: a cup of coffee together, a small conversation about things going on in the day can make me feel so much more comfortable in my own skin.
I saw my body as hideous due to the weight put on from this disease. I saw my mind unattractive from the loss of memory and inability to speak properly. My confidence was shattered due to the loss of friends, family, and acquaintances from being sick. All of this adds up and gives a self-image that can be distorted
It is hard for others who do not have the disease to understand the depth of these problems. Never in a million years will I belittle anyone else’s symptoms because I know how much it hurts when people belittle mine. Before I truly understood about this disease, I didn’t “get it”. The saying, “You don’t get it until you get it, is so true.
I will leave you with this thought. Imagine living with someone who has trouble speaking, cannot tell you thoughts, wants to be with you but is afraid to touch you, hides bruises and rashes from you in fear. These are things a Lyme patient goes through. And more…
Many blessings,
Christina