Changes

I have an announcement to make!

I am now working at Sacred Spaces Holistic Center.

Same building, new name!

On to the newsletter!

This months group topic was Lyme and Sex:

Lyme and Sex:

In dealing with Lyme disease there are too many topics to look at and this one is always on the back burner. It is hard enough to deal with Lyme on a day to day basis with food, activity, or lack thereof, but must we go into this subject too?

Well, yes. In learning Lyme borreliosis is a cousin to Syphilis, the question comes up of whether Lyme is an STD.

In an article from Lymedisease.org from 2014, there was a study done in Carmel CA to see if Lyme could be transmitted sexually. They found this: “all women with Lyme disease tested positive for Borrelia burgdorferi in vaginal secretions, while about half of the men with Lyme disease tested positive for the Lyme spirochete in semen samples. Furthermore, one of the heterosexual couples with Lyme disease showed identical strains of the Lyme spirochete in their genital secretions.” (Reference: The Journal of Investigative Medicine 2014; 62:280-281.)

Microbiologist, Professor Lidia Mattman has studied this topic for many years and has isolated the Lyme bacteria for study in different circumstances and she has found this:” The bacteria live inside urine, breast milk and tears, semen, blood, plasma, and the moisture in the brains and spinal cord. She found Borrelia in tears and explains how easy Borrelia can therefore be transmitted through the hands.

Further, the isolated living Borrelia spirochetes, inter alia, mosquitoes, fleas, mites, semen, urine, blood, plasma and CSF. What she discovered that this bacterium is dangerous because it can survive and spread without cell wall (L shape).

(Because L-forms do not possess cell wall, they are resistant to bèta-lactamantibiotics, such as penicillin. These are antibiotics that act on the cell wall)

Many families are already known for having all members (as with Rosan) suffering from borreliosis, but each of which, prior to the conclusion thereof, contributed another diagnostic label, with the consequent (not full effect) medication. The result being that if one family member has Lyme, the whole family should be treated.” (https://www.lymeepidemie.nl/transfer-lyme-disease/?lang=en)

So what can we do?

First, let’s look at how we prevent getting an STD.

You should:

Use latex condoms every time you have sex. ...bodily or oral.

Avoid sharing towels or underclothing.

Wash before and after intercourse.

Get a vaccination for hepatitis B. ... (good advice).

Get tested for HIV, Lyme and other co infections.

If you have a problem with drug or alcohol abuse, get help. ...

Look into how to have safe sex.

In Essence, use a condom, use materials that cover the tongue,( Yes, there are products out there to use.), go through the motions with clothes on. The best way to not pass any disease on to anyone is abstinence. Back to number 7.

Bad news? Perhaps, but safe is always better than being sick or passing an illness on.
I will send out a second email this month because Thanksgiving is coming and we all want to eat yummy amazing food that will not cause us to herx.
I hope this newsletter will find everyone in good health and on a path to happiness.
Christina

PS Consider that not having sex is the only sure way to prevent STDs.

Moods and Lyme disease

Moods and Lyme disease:

Lyme disease is known to cause a ton of problems.  So, let’s get basic about this: The spirochete is shaped like a cork screw. It travels in a biofilm that can hold thousands of spirochetes. They travel through the body screwing themselves into any and every cell they can all along.

One of the favorite spots is the brain. So, there will be lots of corkscrew holes in the braincells, thousands in fact. This can cause inflammation and a plethora of problems such as neurological issues, cognitive issues and the list goes on.

Here is a quote from an article from Global Lyme Alliance: “I’ve experienced “Lyme brain,” and the symptoms are similar. Throughout my 20-year battle with Lyme and other tick-borne illnesses—eight of which were undiagnosed and untreated—I have wrestled with shortterm memory loss, confusion, brain fog, word repetition, difficulty retrieving vocabulary, and a tendency to mix up words. Other neurological symptoms have included insomnia, hallucinogenic nightmares, migraines, burning extremities and mini seizures.”

Physical presentations of the brain being affected is quite normal and evident by many patients. As for myself, I went from being able to speak foreign languages to barley being able to handle English. My vision has changed, I sometimes have cognitive issues and that makes me frustrated. The information is still in the old bean somewhere, just not available right this moment. Depends on the day.

Is it any surprise emotional issues pop up?

 Well, when a person gets sick they feel awful. When they find out about a diagnosis of something needing treatment for a long time or learns physicians are not agreeing on how to treat or if the disease is serious, there are a myriad of emotions from shock to disbelief to anger to rage to sorrow and in some cases giving up.

Then there are the neurological reactions to the borrelia being in the brain long term as listed below from a site I found.

“Some patients have developed Lyme-related psychiatric symptoms:

  • Psychoses including hallucinations and delusions.

  • Emotional lability: rapid mood swings, episodes of rage, crying, reduced impulse control.

  • Depression.

  • Suicidal thoughts and behavior.

  • Anxiety/Panic attacks.

  • Mood swings that may mimic bipolar disorder (manic-depression).

  • Obsessive-compulsive disorder (OCD).

  • Sleep Disorders.

  • An Attention deficit/hyperactivity disorder (ADD/ADHD)-like syndrome.

  • Autism-like syndrome.

  • Delirium.

  • A progressive dementia.

Patients may also be wrongly diagnosed with hypochondrial and somatoform disorders as well as ME (Myalgic Encephalitis) and CFS (Chronic Fatigue Syndrome), if they are perceived as having medically unexplained symptoms.”

( https://www.lymediseaseaction.org.uk/about-lyme/neurology-psychiatry/)

There are a lot of why’s involved in any conversation about Lyme disease. Some people dismiss it, some people mourn their lost lives and others think people with Lyme are just lazy. I have heard it all. It is no wonder folks have many mood swings with Lyme and it is not just from medical biological problems. It is also caused by the environment of the disease itself. ( I say lack of education in the medical arena, but perhaps it is more than that.)

So, if you ever have had these issues and found fantastic ways of dealing with them, please can you share? There can be handy tools and little practices to overcome these inconveniences daily.

One thing that has helped me hugely is the GPS. When I cannot recognize an area, I pop that baby on and get to where I need to go! It is awesome!  Share with us what you have had to overcome and how you did it. It may help someone else in their journey.

In other news:

We have made it through the summer classes season and have had fantastic response from people at events.  Tank you everyone for all the love. I especially want to thank Sawyer for yet again sponsoring us through this season. Great company!

We are doing two Lyme Circles a month, one in the morning and one in the evening and we do classes at Therapy Box Inc. in Frederick and in Elicott City. Thank you Therapy Box for welcoming me to the family.

I will be doing aroma touch therapy for folks who schedule through Therapy Box as well as Wellness coaching.  I want to thank everyone who comes to the Circles and classes. You are wonderful!

Please be good to yourselves and visit our Circle whenever you can. Next topic will be : " Our favorite Recipes". Bring a recipe to share!

Lots happening...

Hello everyone!

There has been a lot going on lately!

I apologize for not keeping everyone up to date on everything.

June is a busy month starting with Bless The Woods: Thursday, June 7 through Sunday, June 10 2018. Non Stop music and Lyme Education in Fairplay MD at the Woodman's Campgrounds. Come join us.

Next will be Frederick Pride on Saturday, June 23rd at Carroll Creek Linear Park ,Frederick MD.

On Tuesday,July 17th the Navigating Lyme class will be at Therapy Box on Industry Lane from 6 pm - 9 pm. A lot of information and Question and answer time!  Check in and call Therapy Box to save your seat or call them to schedule a consultation! I am a new partner in their offiec so come on over and check it out!

Last thing I want to mention is that no matter what kind of tick or bug that bites you, get checked. Send the ticks in to UMASS in Amherst to get the ticks tested, ( yes, even if they are dog ticks)! Be safe. Be informed!

Much love to you all,

Christina

Busy November

  Busy November                     This month has been a month of posting about being thankful and sharing with others on social media. I will say though I have had a real struggle with my emotions over one thing.  I educate people about Lyme disease and I also hawk my wares by asking people if they might want to prevent it. The response I get is 95% the same: “I already know all about Lyme disease!” I admit, I get very agitated when this happens. So, why, I ask are so many people getting it?  What I really want to say is, will you please tell the doctors all you know? We really need your help!  Erm, perhaps not, lol. The truth is no one is really interested in talking about it because it is either too scary or it is embarrassing in this age of information to admit no knowledge of what it is and how you get it. They trust information on the internet to be true and leave it at that.  In the midst of trying to find some way to get places to schedule classes, I found out my Lyme, Bartonella and Babesia is back in rare form. I am back on antibiotics and fighting the fight. Do I give up on trying to educate others, so they will be safe? No! I pull a meeting together to see how my friends and I can get information out there!  We concluded FEAR is the thing we need to overcome. With that in mind, I want to give an antidote I wrote about before for fear.   F orgive: Yourself and others.   E ngage: In communication with someone / others.   A ccept: you are a person with purpose.   R ethink: Your outlook.  This is what helps me. Also, I want to mention on this Wednesday before Thanksgiving how much I appreciate the people who sit with me and work with me at meeting and through all the work of trying to educate people about Lyme disease.  All of you are so amazing and are precious to me. If I could give you the world, I would.  Happy Thanksgiving everyone! Be fearless!  PS Can Do will be at The WinterFest Market! =) See Below!

Busy November

                This month has been a month of posting about being thankful and sharing with others on social media. I will say though I have had a real struggle with my emotions over one thing.

I educate people about Lyme disease and I also hawk my wares by asking people if they might want to prevent it. The response I get is 95% the same: “I already know all about Lyme disease!” I admit, I get very agitated when this happens. So, why, I ask are so many people getting it?

What I really want to say is, will you please tell the doctors all you know? We really need your help!  Erm, perhaps not, lol. The truth is no one is really interested in talking about it because it is either too scary or it is embarrassing in this age of information to admit no knowledge of what it is and how you get it. They trust information on the internet to be true and leave it at that.

In the midst of trying to find some way to get places to schedule classes, I found out my Lyme, Bartonella and Babesia is back in rare form. I am back on antibiotics and fighting the fight. Do I give up on trying to educate others, so they will be safe? No! I pull a meeting together to see how my friends and I can get information out there!

We concluded FEAR is the thing we need to overcome. With that in mind, I want to give an antidote I wrote about before for fear.

Forgive: Yourself and others.

Engage: In communication with someone / others.

Accept: you are a person with purpose.

Rethink: Your outlook.

This is what helps me. Also, I want to mention on this Wednesday before Thanksgiving how much I appreciate the people who sit with me and work with me at meeting and through all the work of trying to educate people about Lyme disease.

All of you are so amazing and are precious to me. If I could give you the world, I would.

Happy Thanksgiving everyone! Be fearless!

PS Can Do will be at The WinterFest Market! =) See Below!

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A Day in the life...

     Part of understanding Lyme disease and it’s co infections is to approach education not just from the science and medical perspective, but from the people affected by the disease.
     Walking through the shoes of the people with Lyme. Going through a day and feeling and seeing what they go through. So, in this spirit I am going write about one of my relapses. Relapses happen from time to time due to stress, not staying on protocol, exposure to mold and many more issues. It can happen to any patient at any time after remission.
     I had made plans to go to a festival. I was so excited because some friends I know do this event and there is a wide variety of people who go there. I also had mistakenly thought it was closer than it was. (I thought it was a town 45 minutes from me versus the town it was which was 2 hours and forty-five minutes away.
     I packed everything even though I was feeling off, I figured I would take my time and ask my husband if we might go together so he will drive.
     Next morning, I woke up with a family of cicadas yelling in my ears, pain screaming through my head and a rash searing my belly with pain and an insatiable itch radiating down to my knees. I crawled out of bed and got downstairs to feed the dogs. I put an oil blend for migraines on my head and back of my neck, pulled myself up by the counter and put a pack of ice on my neck.
     I let the dogs out, moved around holding the walls and pulled out some ready made jello, my med packs and migraine medicine. Put everything on the table, sat down and ate then took my medicines. I messaged my friends to say I will see them after my medicine took effect.
I let the dogs back in and sat loving on them while I waited for the meds to take effect. Soon the buzzing in my ears settled down and the pain in my head eased a bit. My throat became thick and it was hard to swallow because of the medicine but I am accustomed to such things.
     I got up moved towards upstairs walking in crooked directions but I was moving, so I went and got dressed.
     My husband and I had a cup of coffee together as we talked about the day. He pointed out to me I had made a mistake about how far the event was and asked if I felt up to going. At the time, I felt maybe I could so I asked him if we can go to the store to get my dandelion tea as a test run.
We went to the store and as time went on where my clothing touched my rash, my skin was on fire with pain and itching, my head was light and I weaved back and forth while walking and then when sitting I felt like I was still weaving. My husband and I talked about my symptoms and expressed concern. I was going to be head strong because I want to see my friends, I want to hand out my business cards, I want to get my work done, but I noticed how gentle my husband’s words were.
     Common sense won over stubbornness. As I called my friends to tell them I would not make it, tears streamed down my face the sun was beautiful, the breezes amazing and all I felt was physical and mental pain as the itching and burning seared down to my legs. Clearing up the symptoms will take time but the inability to see my friends, enjoy a beautiful day really pissed me off.
     The rest of my day was filled with resting, being with the dogs and family, detoxing and medication. I did get to sit on the front porch for a while and quieted my anger with deep breathing and knowing I will be back up and around to drive my family nuts eventually. (The thought makes me smile).
     And that was my day. Itchy, painful and uncomfortable. As a health coach, I know all the things to do to get better and I apply what I need for my symptoms. The symptoms are ever changing and it takes time to remedy them. As a person, the time it takes to heal properly and the complete faith believing I will is the hardest practice to stick with. If you ever worry about do I practice what I preach, I do. Every day. It is my life.
Wishing you joy and love,
Christina

Tough Topic

First let me tell you the latest events:
July 25, 2017, Tuesday @ 10:00 am
Presentation with Dr. Nancy Fox at Elkridge Elementary School.
July 30, 2017, Sunday 11:00 am - 6:00pm
Pagan Pride Day in Martinsburg WVA at Mason Dixon Historical Park, 79 Buckeye Road, Maidsville, West Virginia .
Tough topic
This morning I am pondering, not lightly, the topic of how Lyme disease changes the lives of couples.
There seems to be many couples who go through many facets of emotional difficulty when one or the other partner get Lyme disease. Not many couples stay together during the healing process. It is a hard road to go on. It definitely tests all facets of a relationship.
There have been discussions about how Lyme disease can be transmitted through sexual contact. (It is also congenital for those thinking about having children). This brings up the difficulties of communicating with your partner about the disease and all the emotional side effects occurring during times of intimacy.
On one hand, it seems basic knowledge to practice safe sex. There are those who did not know they had Lyme and may have infected their partners unknowingly. It is a scary topic boggling the minds of single people and married couples alike. In writing, this I am having a lot of mixed emotions so I figure it is an important topic to deal with.
Let me do this on a personal basis:
When I found out I have Lyme disease I was a bit stunned and had no idea it was communicable. My husband and I are a typical loving couple and carried on our relationship as we always had. We began to talk about things but went through phases and not necessarily at the same time.
It was a bit later I had found out about the nature of the disease.
This was many years after I had my children and been active with my husband. To say I was riddled with guilt, shame and many questions, well, undeniable. What had I done to my family unknowingly? How do I ever get over the possibility I gave this disease to my loved ones? It is devastating.
Here is the good news: They have been tested regularly and have come back negative for Lyme disease. Do I still worry? Everyday. Is it far from my mind?  Nope.
I am learning to cope with all the emotions moment by moment as things come up. I also talk with my husband openly about this subject so understanding and compassion for each other is practiced during our lifelong commitment to each other. Easy? Hell no. Frustrating? Hell yes.
So not only has my drive been messed up by crappy symptoms occurring during this disease, but it has been depleted by the emotional side effects. Crap! I love my husband so much, but how do I go back to being wildly passionate when I don’t feel that way? Will I ever feel beautiful again? Will I have a sex drive again? So many questions.
 It takes time. It takes finding ways to bring myself back from fear and panic and putting myself in my husband’s place. My husband also has told me we have a lot more than sex invested in our marriage. His support is so crucial through this journey.
There is no way to explain how important it is to have someone accept you and just be there. Little everyday things bring joy: a cup of coffee together, a small conversation about things going on in the day can make me feel so much more comfortable in my own skin.
I saw my body as hideous due to the weight put on from this disease. I saw my mind unattractive from the loss of memory and inability to speak properly. My confidence was shattered due to the loss of friends, family, and acquaintances from being sick. All of this adds up and gives a self-image that can be distorted
It is hard for others who do not have the disease to understand the depth of these problems. Never in a million years will I belittle anyone else’s symptoms because I know how much it hurts when people belittle mine. Before I truly understood about this disease, I didn’t “get it”. The saying, “You don’t get it until you get it, is so true.
I will leave you with this thought. Imagine living with someone who has trouble speaking, cannot tell you thoughts, wants to be with you but is afraid to touch you, hides bruises and rashes from you in fear. These are things a Lyme patient goes through. And more…
Many blessings,
Christina

Back from Bless The Woods 6

Hello All,

Just got back from doing the “Bless the Woods 6 “Concert in Fairplay MD.

My partner in Can Do With Lyme LLC, Adrian VanKeuren runs a fundraiser / Awareness booth at the event and she is fantastic to work for and with.

We saw many people who have been exposed to ticks in varying ways and possibly have Lyme but were just uncertain.  I will put a list here of possible ways to tell the symptoms

1.       If you can’t breathe

2.       If your heart and chest hurt beyond reason

3.       If one of your limbs turn purple

4.       If pain and numbness of limbs occur without cause

5.       If you black out for no reason

6.       If you have sudden vision changes

7.       If for no reason you cannot walk

8.       Seizures for no reason

9.       Severe headache with numbness following it

10.   Localized severe swelling or limb or joints get hard

Bottom line is if anything occurs that is surprising and different from the symptoms you may have any normal day, go get tested and put in your file that anytime you get bloodwork done you want a Lyme test. As a patient, you have the right to get the test.

For the fella that lives in his van, Use the bug balm regularly.

For the musician from “Sun and Rain”, for the issue we talked about, experiment with what foods bother you. Eating gluten free, dairy free, sugar free and nightshade free is very helpful. If you need anything give me a jingle or message.

Sad announcement: We will not be at Frederick Pride this year. There was a mix up in paper work. I will miss the event terribly. Please, any of you that go, have fun for us.

For all of you, keep in touch with Adrian and me so we can be of service to you. We are in a time when all of us need to be aware and conscious of this problem. It is the responsibility of all of us to bond together and do what we can to help our community. This disease not only affects us but affects the future of the Human race. It is time to drop all agendas and work united.

Well, off to have some salad. Thanks for reading.

Blessings,

Christina

Art Fundraiser for Lyme Education

<div class="canva-embed" data-height-ratio="0.5" data-design-id="DACRqMrr4Lo" style="padding:50% 5px 5px 5px;background:rgba(0,0,0,0.03);border-radius:8px;"></div><script async src="https://sdk.canva.com/v1/embed.js"></script><a href="https://www.canva.com/design/DACRqMrr4Lo/view?utm_content=DACRqMrr4Lo&utm_campaign=designshare&utm_medium=embeds&utm_source=link" target="_blank">Dublin Roasters Coffee Shop</a> by <a href="https://www.canva.com/candowithlyme2?utm_campaign=designshare&utm_medium=embeds&utm_source=link" target="_blank">Christina Murphy</a>

Tick season is already here

Preparing for Tick infestation:

 This winter is a mild winter.

Mild winters allow vectors to reproduce instead of going dormant meaning that there will be an increase in tick, mosquito and other vectors populations.

Spring, summer and fall will be filled with these lovely creatures and it is important to prepare for safety.

Here is a simple list of things to do to protect yourself from bites during this season:

Wear bright colors: You will be able to see ticks better against a white or bright background.

Treat clothes with permethrin or purchase clothes from companies like www.insectshield.com/, http://www.orvis.com/s/insect-repellent-clothing-by-bugsaway-from-orvis/3741  and www.bugbewear.com/ .  

Insectshield even offers to treat your own clothes.

 I treat my own before I know I am going somewhere outdoors for a while or away for a camping trip. Spray your clothes and hang them to dry and this will last for about 4-5 washes.

Wear head covering. Wear pants with the bottoms tucked into socks. Wear shoes. I started to get the old cammo with boots look fashion statement going to be fashionable.

When outdoors, stay on paths and do not stray in tall grasses. Avoid woodpiles and exploring bushes.

You can wear your favorite bug repellant or make a homemade repellant out of lemongrass and eucalyptus oils with water and put in a spray bottle. I like wearing cedar wood, but the verdict is mixed on that.

 Oils available here:  https://www.mydoterra.com/christinamurphycandowithlyme/#/

When returning home from an event, do a tick check and be sure to take extra care to check places like underarms, behind the knees, area where legs meet the torso or otherwise known as personal areas. Ticks love dark, humid and hair.  Check twice and get a good shower.  If you can have a buddy do a check for you.

Call your doctor if you get a fever, feel like you have the flu or get a rash.  Know what the ticks look like.

Prevention is key. Life can be fun and even getting ready for life can be made fun. Life is a great adventure and a little preparation can make the adventure last a long time!

So, now you know that, come learn more at any of the events I am doing this year.

Most are confirmed, but check in to be certain!

Event Calendar for 2017:

February 4th First Saturday Downtown Frederick

The Common Market:

March 8th 6:30 pm

March 22nd 6:30pm

March 29th 6:30 pm

Illuminate Frederick : Confirmed!

Sunday April 23rd, 11 am – 6 pm

FSK

http://illuminatefrederick.com/

Festival of Legends:

April 29th and 30th, 2017

Optimist Farm, Apex NC

Spring Ridge Spring Fling:

May 12th Spring Ridge Elementary School.th? 5:30- 8:00pm.

Maryland Faerie Festival:

 June 10 and 11, 2017
2564 Silver Rd.
Darlington, MD 21034

http://marylandfaeriefestival.org/

Bless The Woods

June 9 – 11        Fairplay MD

Frederick Pride Day

June 24, 2017: 11am-7pm
Carroll Creek Linear Park,
Downtown Frederick MD (between Market & Carroll Streets)

2016 Photos Here; 6,000 attendees

Event Details...

Illuminate “The Beach” Delaware: August 13

 

Illuminate Columbia: September 12th


PPD Event: Saturday, September 16, 2017
Location: The Unitarian Universalist Congregation of Frederick, 4880 Elmer Derr Road Frederick, MD 21703
Links: Website : Facebook
Email: frederickpaganpride@gmail.com

Pagan Pride NC?

Nancy’s Event: Oct. 7 &8

 

Illuminate Frederick:  October 22

Illuminate Annapolis: November 12th