May 2019: Lyme Awareness month

Lyme disease Awareness month:

It is very profound that the ribbon for Lyme disease is also the same ribbon for military families. It is also representing two other groups, but this is our month!

I apologize if this is a long newsletter, but there is tons going on this month and I don’t want to forget a thing.

It is a great opportunity for all Lyme patients and their families to find their voice and speak up, educate and advocate for the better treatment for this disease. It is a disease, not a syndrome. A disease which numbers far exceed any disease we have had before this time and yet is getting little or damaging recognition. Our children and all future generations need better care and education. Let’s learn from the past to make a better future.

May is Lyme Awareness month so let’s get rocking! =)

First, remember to use your bug repellent, wear permethrin treated clothes and shoes.

Next, to remove a tick, use needle nose tweezers and slide under the head so you can pull the tick straight up! Put the tick in a Ziploc snack bag that is labelled with your name, date and location. Put a small piece of wet paper towel in and seal it up. Send the bag to either your local health department, (political move), or Tick Check to be analyzed. (they can be found online, and it does cost money).

There are research programs going on in each state to test ticks so look them up online if you want to send your tick in to them. Research data is so important currently so go for it!

After this, get treatment. Be safe. You pay the doctor’s salary so demand the best care.

This part of the newsletter is all the calendar of events for me and others:

First is my calendar: Can Do With Lyme LLC Calendar for 2019

Schedule for 2019

Support Groups 2019:
Sacred Space Holistic Center Evening Support: Every 3rd Tuesday of the month, 7 PM – 8:30 PM.
Dates are: January 15,2019
February 19, 2019
March 19, 1019
April 16, 2019
May 21, 2019
June 18,2019
July 16, 2019
August 20,2019
September 17, 2019
October 15, 2019
November 19, 2019
December 17, 2019

For those unable to attend the evening support groups, I offer an alternative on every second Wednesday of the month at Dublin Roasters Coffee Shop from 10:00 am -12:00pm.


Classes at Sacred Space Holistic Center: Held quarterly through the year on the Fourth Tuesday of months chosen.
January 22, 2019, April 23, 2019, August 27, 2019, November 26, 2019.
Classes are from 7:00 PM – 9:00 PM. Pre-registration is required.

Private classes have been scheduled and one week in July, I will be on the road with The LEAF program.

Events:

April12- 15: Festival of Legends, Apex, NC

May: New Market Green Days: May 11

- May 18, 2019 10:00 am till 5:00 pm. Middletown Rec Council 10th Annual Color Me Spring - Spring Festival Location: Middletown Community Park off Coblenz Rd.

June 8- 10: Bless The Woods, Fairplay MD ( Big Event)

June15, New Market Green days

June 22, Frederick Pride

July: July, 13, New Market Days, New Market MD

July 29 – August1, Education Classes in Salisbury MD and Eastern PA

August: August 10, New Market Green Event

September: September 14, New Market Green Event

Free

Second is everyone else:


Lyme Alive meetings and events (not in chronological order!) **Saturday, May 25th, Lyme Alive is hosting a screening of both award-winning lyme disease documentaries Under Our Skin & Under Our Skin 2: Emergence at Bowman library from 12-4:30pm!** If you have not seen these movies, you need to make plans to be here. If you have seen these movies, you know how eye-opening they can be; please encourage your families and friends to attend. We will be serving light refreshments, etc this day, and will be "boosting" the event on Facebook to increase visibility and to hopefully get more people to attend. More information: https://www.facebook.com/events/320908201902364/ Our Social meeting is Tuesday, May 14th from 1-3pm at the World of Healing (33 S Loudoun St, Winchester VA 22601). Please join us for a light lunch, pot of tea, or simply socialization. More information: https://www.facebook.com/events/679618139136911/ I am also asking for help on Wednesday, May 8th from 12-2pm at the Bowman library (871 Tasker Rd, Stephens City VA 22655) in order to help put together kids' lyme prevention bags. Each bag will contain a brochure, tick ID card, 2 coloring sheets, crayons, and small toy. All materials provided, I'm simply requesting help stuffing bags. (A huge THANK YOU to those that committed to helping within minutes of me asking on facebook!) More info: https://www.facebook.com/events/2175007375954130/ Lyme Alive will have an information booth at the annual Garden Fair, held Mother's Day Weekend at Blandy Farm. The dates are May 11 & 12, and I'm grateful to Deborah and Jason for volunteering to help me here. Lyme Alive will also have an information booth at the Time to Move for Lyme 5K event, hosted by Anytime Fitness at Sherando High School on Sunday, May 19th from 8am-12. I'm grateful to Georgia Bass for bringing this event to my attention yesterday, and to those that are organizing it. If anyone (aside from Jason) would like to volunteer to help at this event, please let me know! More info: https://www.facebook.com/events/2307608079477071/ Other Lyme Events Friday, May 17th is a Lyme Rally in Washington, DC from 9am-??; the plan is to march the halls of Congress in order to demand awareness and recognition of "chronic lyme". A candlelight vigil will follow, and a list of names of deceased lyme warriors will be read aloud. Myself and a couple of others WILL be there - please let me know if you'd like to join us!! We can easily make plans to accommodate anyone that wants to go along! More info: https://www.facebook.com/events/1059089830914569/ Sunday, May 19th is the National Capital Lyme and Associated Disease Society's (NatCapLyme) annual 5K/1K Finish Lyme run. It has a new location this year; 4100 Monument Drive, Fairfax VA 22030. (Yes, I know this is a direct conflict with the local 5K that is being hosted; I will be at the local one in Stephens City.) On Thursday, May 30th, the Loudoun Lyme group is hosting a free Federal Tick-borne Disease Working Group update, held at Belmont Country Club from 7-8:30pm. Dr John Aucott from Johns Hopkins will be there, as will Kristin Honey. So far, we have 4 support group members that are committed to going - please let me know if you'd like to join us. More info: https://www.facebook.com/events/2622787917737402/ TONIGHT, Thursday the 2nd the Warren County Support Group is meeting. More information on that meeting can be found here: https://www.facebook.com/events/2305043389560399/

Well then, I think that is all there is for now. I apologize for the length.

Be well, be safe,

Christina