Are Essential Oils Supportive for healing?

Oils and enhancing healing for Lyme:

There was a time when breathing in the fragrance of camphor and eucalyptus was an essential thing in Grandma’s house in order to relieve the symptoms of a cold. Who can say whether it was the comfort of the steam or the essential oils from the plants themselves that felt so healing.

In the same token, there are essential oils that have been said to be very beneficial in the healing journey of Lyme disease. The familiar scent of Lavender is very soothing and calming. Can this be helpful? I do believe so. Lavender itself has been used for centuries by ancient cultures as a muscle relaxant, sleep aide and for its other healing properties.

With Lyme disease having so many different presentations in myriads of patients, Oils can be beneficial to soothe patients where mostly needed. One person may have heart fluxes and need something calming in the environment they are in like Lavender and Roman Chamomile. Another person may have focus issues and want the smell of Wild Orange or Peppermint in the air.

There have been some studies that have shown that healing can occur when oils have been introduced as a support modality. In other research specific oils have been found to bind to bio films and dissolve them.* Can this be beneficial in some circumstances? Surely it can be.

I find it fascinating that essential oils have been used in different cultures since the BCE eras. With that kind of staying power and dependability it makes me wonder what other wonderful things essential oils can do. In my own home I have used certain oils in a diffuser to give me comfort during a stressing time or freshen my living environment. It is proven that certain pests are repelled by mint which means they will not be bringing unwanted vectors into the house. (Like ticks or mosquitoes).

As a Head Gardener for a museum, I also understood from my research and education that Comfrey was used to reduce inflammation and was kept in most Colonial gardens as part of the family pharmacy. I do believe that there are other plants whose essences have been scientifically proven to be beneficial.

If ever there were a time to make use of all of God’s pharmacy, now is the time. When going for a protocol for healing Lyme consider having oils support you. If you want to know more, please contact me at candowithlyme2@gmail.com or contact your local doTerra representative. doTerra’s grade quality is of the purest grade I know of and the reps are very knowledgeable.

(do Terra is only one company that sells oils of this nature. If there is a company you prefer, fantastic! Definitely check them out and make sure whatever company you go with has a pure grade oils measured from an outside source.)

 *http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3346404/

 Disclaimer: Christina Murphy and Can Do With Lyme LLC is not a medical organization, and they do not purport to provide medical advice. The information herein is provided in good faith for general information purposes only. We do not make any guarantee of the reliability or accuracy of this information as there is new information being discovered on a daily basis. Any action that you take upon the information here is strictly at your own discretion and we will not be liable for any losses or damages in connection with the use of our information.

This Holiday Season

This Holiday Season

Hello everyone. It has been a very event filled fall and the adventures have not stopped yet!

We are now heading into the Holiday season and whether you celebrate Christmas, Yule, Kwanzaa or Chanukah, it can get overwhelming at times.

I have written before about how having an invisible disease is hard. It is especially difficult during the Holidays because people around you may forget you are sick and remember how you used to be.

Expectations of yourself can be an emotional roller coaster and create an added stress that is not necessary. Here are some tips to not lose yourself to the Holiday stresses:

1.       Be kind to yourself.

2.       Set boundaries for yourself

3.       Set times for you to rest

4.       Remind others of the things you need to function well.

5.       Turn on some music to bring you joy. Create a playlist for each emotion. It will relieve your stress. Listen to the music so it can let the emotion flow out of you

So, what do you listen to?

Do you have a favorite playlist?  Share your playlist with us, let’s have fun discussing this!

Here’s to hoping we all have a great holiday and fill our lives with love and music!

PS   I want to thank Ric for his brilliant input for this newsletter!

Wondering Times

Wondering times.

This past Sunday I did the “Lyme in Winter” event with Julia Lockett.  It was fun and noisy and lots of information was shared. Sending thanks to the crew at Dublin Roasters Coffee shop and Julia for all you do.

During the past few hours, my phone has been charging and not been very cooperative as far as communication.  I have been wondering what if we had to go back to the way things were before cell phones and other technology that we enjoy so much.

Being a Lyme patient is very much like being separated from conveniences that we think are necessary or that we take for granted. Neurological difficulties and cognitive difficulties take away ones’ abilities to communicate or move like everyone else. It is, at times, unnoticeable, but it is still there.

There is a wondering on the part of the Lyme sufferer of how to adapt to this, (which can branch off to other thoughts where you lose the original thought). Also, the caregiver or family wonders what is going on with the person who has Lyme and contemplates on how to help or navigate life in order to be there for them.

It is hard sometimes and leads to frustration on all sides.  So, this Thanksgiving remember that your family member who has Lyme is not the same anymore. For those who have Lyme, trust that the people around you have no idea what you are going through and love them. I hope all of you have a wonderful Thanksgiving. If you need any help with recipes or product suggestions for food, message me at candowithlyme2@gmail.com. I have favorite stuff and recipes I use and I am happy to share.

Happy Thanksgiving everyone,

Christina

Learning Spoons

 

Learning Spoons

One of the hardest things people with chronic or complex illnesses learn is how to work within their abilities.

When we have a good day or there is a long backlog of needs, so we push our boundaries. We then end up exhausted, and back at square one.

This is one of my most difficult challenges on a daily basis. I feel fairly well, so I go to my job, then to the store and keep running until I cannot move. Guess what happens by dinner time? I end up needing help or just asking someone else to make it.

A very good friend told me about the spoon theory.

You have 12 spoons in a day, each representing the energy it takes to do a task.

http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

 

Example: For me, (each person has different levels of energy assigned to tasks), one spoon can be getting out of bed. On a good day, one spoon can be getting out of bed and getting dressed. You can see where this is going.  By the time I get off work, I might have one or two spoons left for the day.

Lately, I have been forgetting to keep track of spoons. This has led to exhaustion and my body becoming overly stressed. I have decided after having a hectic two weeks to get back to self-care and work within my abilities.  This means counting my spoons and communicating with my family about how things are going.

When caring for yourself, be honest about what hurts, what works and what you need to be healthy or healing. Communicate to those around you about these things and set up a system to succeed. It will make you happier and when you are happy, it is contagious!

Just because we live in a fast paced world does not mean that you have to overexert yourself. Be mindful of your own limits. Even small seemingly innocuous things such as electronics and smart phones can be draining. Maybe you need to turn them off to conserve your spoons. Explore and learn your own boundaries to keep yourself healthy. Be mindful of both your physical and mental states as you navigate your life. If something is taking too many spoons, budget your energy accordingly. By recognizing our new boundaries, we can live each day to the fullest without over exertion.

Cheers,

Christina

Support Groups: Helping deal with pain, stress, fear, loneliness and isolation.

I had a different newsletter for this week but found myself writing this today.

As I sit here waiting for people to come to the coffee shop to talk about Lyme, I think of days I have sat alone or had a filled room.

 I am here every Wednesday and invite anyone who is able to come, to come and talk. No topic is too big or small and all of it matters.

We are all affected by Lyme disease one way or another.  It can be by being a patient, being a caregiver, parent, family member or the physician who treats Lyme patients Every aspect of this disease is important to talk about especially when so few people will talk about it.

So many times I have offered information about Lyme to people who quickly say, “had that” and they quickly walk away like they can’t get away fast enough. I am left stunned.  It really makes me question myself.  Is being available every week for people to get answers to questions or to share information a good thing? Am I doing the right thing?

Yes. It is important. We all need to share what we know, what we have experienced so that others that come after us may learn. Lyme disease has been prevalent for many years. It is finally getting a foot hold of attention after forty some years of struggling patients and groups fighting like crazy.

The more these groups band together and become united, the better it will be. That comes back to support. Supporting each other, supporting people who feel they are alone. Joining in conversation with each other. Gathering together to talk about Lyme and its’ effects on home, work and family.

Let’s talk, comfort each other, give each other information, be informed and find those that feel isolated and let them know they are not alone. Let’s start getting mission statements in our churches to help the housebound Lyme patients and show them they are not forgotten. They are loved, not shunned.

Let us help each other to deal with the pain, stress, depression, fear, the sense of loneliness and isolation that this disease causes.

Much love,

Christina

Updates

As this page is for my friends and family, I am going to update folks on projects I am working on.

I am attempting to do better marketing on Embracing Healing. I know I have not been fantastic at marketing, but I am giving it a go.

Next book on the list is in the works. More news later.

Working on a curriculum / syllabus with dear friend Kate Smith Ridgely for Lyme Caretaker certification. We hope to have that ready soon.

Submitting a syllabus to FCC for Lyme Education again.

Starting soon, I will be back to sporting oil education.

So much to do , so little time. It will all happen. Check here or on the Can Do With Lyme LLC page .

My work is my passion. Anytime you feel I have done well, please leave a comment. The more folks read how you feel about my abilities, the more likely I will stay in business.

Thank you all and have a fantastic holiday weekend.

Tick Testing information

Tick Testing:

Hello All;

As of this month, my certification to do tick testing has expired. The place to renew this has shut down so I will be pursuing this to renew my certification.

In the meantime, below are places where you can send your ticks to be tested. This is very important. To save your ticks, put them between two pieces of tape and then attach to a piece of paper for the techs doing the testing.

With the results, you can be certain to get the treatment you need from your doctor. Remember to request your doctor to use the protocols chosen by The National Guideline Clearinghouse. http://www.guideline.gov/search/search.aspx?term=lyme .

As always, be healthy and prevent Lyme by doing tick checks often.

 

FREE tick testing is available from the Bay Area Lyme Foundation
http://www.bayarealyme.org/lyme-disease-prevention/tick-testing/

Laboratories that test tick-borne pathogens:

Analytical Services, Inc.
Attn: Tick Testing
130 Allen Brook Lane
Williston, VT 05495
(800) 723-4432
www.analyticalservices.com

Clongen Laboratories Tick Testing Service 1
211 Perry Pkwy #6
Gaithersburg, MD 20877
(301) 916-0173
www.clongen.com

Connecticut Pathology Laboratories
1320 Main St., Ste 24
Willimantic, CT 06226
(860) 450-1823

Imugen
315 Norwood Park South
Norwood, MA 02062
(800) 246-8436
www.imugen.com

UMass Extension Diagnostic Lab Tick Assessment
Holdsworth Natural Resources Center
160 Holdsworth Way, University of Massachusetts
Tick-Borne Disease Diagnostics
Amherst, MA 01003
(413) 545-4800
http://ag.umass.edu/services/tick-borne-disease-diagnostics

IGenex
795 San Antonio Rd
Palo Alto, CA 94303
(800) 832-3200
www.igenex.com

 

Additional Tick Testing information:
http://www.tickencounter.org/tick_testing

 

 

 

Disclaimer

Any information provided is for the reader’s own evaluation and is not offered as and should not be considered medical advice. A licensed physician should always be consulted when considering medical decisions and nothing herein may be used in place of advice from your personal physician or other healthcare professional. Links to other sites are provided for ease of research only. Information on those sites is the product of the website author and represents the opinion of those who publish the sites and does not necessarily reflect the opinion or judgement of Can Do With Lyme LLC.

How many species of Lyme / Borrelia are there?

How many species of Lyme / Borrelia are there?

So we know that Borrelia Burgdorferi is a genus of bacteria.

 What do we not know?

It is said there are 100 known species of Borrelia.

 In my research so far, there are 36 known species of Borrelia that have been found since French Biologist Aimee Borrel, (1867–1936), brought this bacterium strain to the forefront.  This bacterium was found in ticks and lice.

Here are the species and the dates found.

•             Borrelia afzelii Canica et al. 1994

•             Borrelia americana Rudenko et al. 2010

•             Borrelia andersonii ♠ Marconi et al. 1995

•             Borrelia anserina ♦ (Sakharoff 1891) Bergey et al. 1925

•             Borrelia baltazardii ♦ (ex Karimi et al. 1979) Karimi et al. 1983

•             Borrelia bavariensis ♠ Margos et al. 2009

•             Borrelia bissettii ♠ Postic et al. 1998

•             Borrelia brasiliensis ♦ Davis 1952

•             Borrelia burgdorferi Johnson et al. 1984 emend. Baranton et al. 1992 (Lyme disease spirochete)

•             Borrelia californiensis ♠ Postic et al. 2007

•             Borrelia carolinensis Rudenko et al. 2011

•             Borrelia caucasica ♦ (Kandelaki 1945) Davis 1957

•             Borrelia coriaceae Johnson et al. 1987

•             Borrelia crocidurae ♦ (Leger 1917) Davis 1957

•             Borrelia dugesii ♦ (Mazzotti 1949) Davis 1957

•             Borrelia duttonii ♦ (Novy and Knapp 1906) Bergey et al. 1925

•             Borrelia garinii Baranton et al. 1992

•             Borrelia graingeri ♦ (Heisch 1953) Davis 1957

•             Borrelia harveyi ♦ (Garnham 1947) Davis 1948

•             Borrelia hermsii ♦ (Davis 1942) Steinhaus 1946

•             Borrelia hispanica ♦ (de Buen 1926) Steinhaus 1946

•             Borrelia japonica Kawabata et al. 1994

•             Borrelia kurtenbachii Margos et al. 2010

•             Borrelia latyschewii ♦ (Sofiev 1941) Davis 1948

•             Borrelia lonestari ♠ Barbour et al. 1996

•             Borrelia lusitaniae Le Fleche et al. 1997

•             Borrelia mazzottii ♦ Davis 1956

•             Borrelia merionesi ♠ Hougen 1974

•             Borrelia microti ♠

•             Borrelia miyamotoi Fukunaga et al. 1995

•             Borrelia parkeri ♦ (Davis 1942) Steinhaus 1946

•             Borrelia persica ♦ (Dschunkowsky 1913) Steinhaus 1946

•             Borrelia queenslandica PopeJG et. al. 1962

•             Borrelia recurrentis ♦ (Lebert 1874) Bergey et al. 1925

•             Borrelia sinica Masuzawa et al. 2001

•             Borrelia spielmanii Richter et al. 2006

•             Borrelia tanukii Fukunaga et al. 1997

•             Borrelia theileri ♦ (Laveran 1903) Bergey et al. 1925

•             Borrelia tillae ♦ Zumpt and Organ 1961

•             Borrelia turcica Güner et al. 2004

•             Borrelia turdi Fukunaga et al. 1997

•             Borrelia turicatae ♦ (Brumpt 1933) Steinhaus 1946

•             Borrelia valaisiana Wang et al. 1997

•             Borrelia venezuelensis ♦ (Brumpt 1921) Brumpt 1922

•             Borrelia vincentii ♥

•             Candidatus Borrelia texasensis Lin et al. 2005

There is now new species found. One is called Borrelia Burgdorferi sensu lato which was discovered in Japan and in February of 2016 Borrelia Mayorelii was found in Wisconsin and Michigan.

The Borrelia Sansu Lato is only found in Japan. I have not found in the study what the symptoms are from this species of bacteria.

 

Borrelia Mayorii has a rash that can appear more spread out and apparently adds nausea and vomiting to the list of typical Lyme symptoms, which include fever, headache and neck pain. B. mayonii patients also had a higher-than-expected concentration of bacteria in their blood.  This information is from Dr. Pratt of the Mayo clinic.

 

The list can be found on Wikipedia and the other two are from ScienceDirect.com and TheNewYorkTimes.com.

With this information, please try to remember that ticks are not the only vector carrying the Borrelia bacteria. It can be contracted from any blood sucking insect. (and in the South West a type of lizard).

The more you know the more you can prevent getting Lyme disease.

In the news

Well, I usually offer information on how to live better with Lyme or how to prevent it.
 Today I am posting about an article I was in. Hope you enjoy it.

"Advocates around the county are hoping to educate the public about the difficulties of diagnosing and treating Lyme disease.

Christina Murphy, a certified health coach living and practicing in New Market, has put together a class to be held at Frederick Community College about Lyme disease. The one-day class will be on Oct. 11.

Murphy was a gardener at Schifferstadt Architectural Museum in Frederick for about a decade, but had to leave in 2009 after being diagnosed with the disease.

She became chronically ill, with swollen limbs and slowed speech.

Initially, her doctors couldn’t figure out what was wrong. Murphy believes doctors generally aren’t trained to look for Lyme.

“That’s a typical nightmare for a Lyme patient,” Murphy said.

Walkersville resident Nina Barry was misdiagnosed for about 20 years before she found a doctor who gave her the right test, she said.

She believes she had a spider bite in 1984 that may have transmitted the Lyme disease virus. She was diagnosed about a decade later with chronic fatigue, but didn’t get a positive Lyme test until 2008.

Barry, who is 61, retired from her position teaching middle school art in Carroll County and has not returned to the classroom since her diagnosis.

Barry doesn’t see herself as an advocate for Lyme disease awareness, but she thinks it’s important that patients know about the right kinds of diagnostic tests.

The IGeneX test, not the routinely used ELISA test, detected her infection, she said. According to the Mayo Clinic, the ELISA test can sometimes provide false-positive results.

A Maryland bill signed into law this year will require certain health care providers and labs to notify patients in writing about the possibility of a false positive or false negative and that “current laboratory testing for Lyme disease can be problematic.”

Nancy Fox, an educational consultant for the National Capital Lyme and Tick-Borne Disease Association, said doctors commonly look for a bullseye-shaped rash and a positive ELISA test.

“Many doctors have to follow that protocol, or feel they have to follow that protocol because that’s what’s been set forth,” she said.

Fox said the association suggests patients ask questions about the tests and treatments they receive.

Murphy became dissatisfied with doctors’ treatment recommendations and opted for a non-pharmaceutical treatment — oregano oil — instead of other antibiotics.

To help people who have been diagnosed with Lyme, Rob Cloutier organized the Frederick County Lyme Disease Support Group about four years ago.

Cloutier was diagnosed with Lyme disease 16 years ago.

He’s also worried that physicians are not well-trained about the diagnosis and treatment of Lyme.

“The main purpose of the support group is to find Lyme-literate physicians,” he said.

A couple of doctors in Frederick County are “Lyme-literate,” he said, although local residents can end up traveling outside the county to find suitable physicians.

“There’s a wide range of physicians within an hour’s drive of Frederick,” he said.

Follow Sylvia Carignan on Twitter: @SylviaCarignan.

Support for Lyme patients

The Frederick County Lyme Disease Support Group meets every third Thursday of the month at the Holy Family Catholic Church on Burkittsville Road. More details are available on the group's Facebook page at facebook.com/FrederickCountyLyme.

The National Capital Lyme Disease Association provides education about Lyme prevention as well as resources for Lyme patients in the Washington, D.C. metro area. For more information, visit natcaplyme.org or call 703-821-8833.

Christina Murphy's Lyme disease information session at Frederick Community College will be held October 11 from 6 p.m. until 8 p.m. The fee is $29.

Clarification:

This story has been updated to clarify that the ELISA test for Lyme disease can result in false negatives as well as false positives.

Sylvia Carignan

Reporter for The Frederick News-Post covering Fort Detrick, Emmitsburg, biolabs, environment, military and health."

 

 

 

Hippocrates and other thoughts

In the past few weeks I was re bitten by a tick and found a secondary tick on my pants.

Where they came from, I am uncertain. I sent the ticks in to be tested and immediately made a doctor’s appointment. As a Wellness coach for Lyme patients, I followed my advice to the letter.

It was rather routine until I was seen by the Nurse Practitioner and was informed that she could only give me one-day dosage of doxycycline for prevention. I asked her if she was using the guidelines from the National Clearing house of guidelines # 1 guidelines and she had no idea and responded with the fact she was using the CDC guidelines.

The conversation was tense but polite. I mentioned Guidelines.gov and she inquired which organization they were from so I told her. She asked me to quote them, which I cannot, but I told her what I could and in her opinion, after she said the word Hippocrates, she would follow the CDC guidelines.

At that point it was not in my interest to argue but I will send the guidelines to her with a print out from the CDC stating, and I quote “Lyme disease is caused by the bacterium Borrelia burgdorferi and is transmitted to humans through the bite of infected blacklegged ticks. Typical symptoms include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system. Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks.  Laboratory testing is helpful if used correctly and performed with validated methods. Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics. Steps to prevent Lyme disease include using insect repellent, removing ticks promptly, applying pesticides, and reducing tick habitat. The ticks that transmit Lyme disease can occasionally transmit other tickborne diseases as well.”

Then I will add information from https://www.clongen.com/clinical-diagnostics-services/lyme-disease-background/  , which is a discussion of Babesiosis being found in ticks from a tick drag.  After that I would put in writing that I will expect a tick test at my next visit and have this appended to my records.

It is sad that we have to do this, but we must advocate for ourselves. Being the ones who knows our bodies best and wanting the best care means doing the leg work to make sure that the people we pay to take care of us have all the up to date information and our best interest at heart. If ever a doctor follows guidelines that are questionable, do some research and talk to well respected research doctor. (Remember we pay them. They need to earn their pay).

Doctors are human and can follow the status quo only because it is what they have been taught. The ones who follow true medical science, know your genetics and how they work in concert are the doctors you will need for the treatment of Lyme.

After all, the oath says, “I will respect the hard-won scientific gains of those physicians in whose steps I walk, and gladly share such knowledge as is mine with those who are to follow. I will apply, for the benefit of the sick, all measures which are required…

I will remember that there is art to medicine as well as science, and that warmth, sympathy, and understanding may outweigh the surgeon's knife or the chemist's drug.

I will not be ashamed to say "I know not," nor will I fail to call in my colleagues when the skills of another are needed for a patient's recovery.”

I really wish doctors might go back to the version called The Declaration of Geneva which was written in 1948 by the WMA in Geneva.  The Hippocratic Oath has a few versions now and “Do No Harm” is nowhere to be found in any of them. It might bring back the word conscience.

For you I will repeat it here:

                                The Declaration of Geneva

At the time of being admitted as a member of the medical profession:

  • I solemnly pledge to consecrate my life to the service of humanity;
  • I will give to my teachers the respect and gratitude that is their due;
  • I will practice my profession with conscience and dignity;
  • The health of my patient will be my first consideration;
  • I will respect the secrets that are confided in me, even after the patient has died;
  • I will maintain by all the means in my power, the honour and the noble traditions of the medical profession;
  • My colleagues will be my sisters and brothers;
  • I will not permit considerations of age, disease or disability, creed, ethnic origin, gender, nationality, political affiliation, race, sexual orientation, social standing or any other factor to intervene between my duty and my patient;
  • I will maintain the utmost respect for human life;
  • I will not use my medical knowledge to violate human rights and civil liberties, even under threat;
  • I make these promises solemnly, freely and upon my honor

In this newsletter is only one example of a medical practitioner’s behavior. By no means do I infer that all medical professionals are the same. They are not.

I hope that all of you have a fantastic month left of summer before the hectic school season begins.

Stay hydrated spray for protection and be happy,

Christina