Art Fundraiser for Lyme Education

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Tick season is already here

Preparing for Tick infestation:

 This winter is a mild winter.

Mild winters allow vectors to reproduce instead of going dormant meaning that there will be an increase in tick, mosquito and other vectors populations.

Spring, summer and fall will be filled with these lovely creatures and it is important to prepare for safety.

Here is a simple list of things to do to protect yourself from bites during this season:

Wear bright colors: You will be able to see ticks better against a white or bright background.

Treat clothes with permethrin or purchase clothes from companies like www.insectshield.com/, http://www.orvis.com/s/insect-repellent-clothing-by-bugsaway-from-orvis/3741  and www.bugbewear.com/ .  

Insectshield even offers to treat your own clothes.

 I treat my own before I know I am going somewhere outdoors for a while or away for a camping trip. Spray your clothes and hang them to dry and this will last for about 4-5 washes.

Wear head covering. Wear pants with the bottoms tucked into socks. Wear shoes. I started to get the old cammo with boots look fashion statement going to be fashionable.

When outdoors, stay on paths and do not stray in tall grasses. Avoid woodpiles and exploring bushes.

You can wear your favorite bug repellant or make a homemade repellant out of lemongrass and eucalyptus oils with water and put in a spray bottle. I like wearing cedar wood, but the verdict is mixed on that.

 Oils available here:  https://www.mydoterra.com/christinamurphycandowithlyme/#/

When returning home from an event, do a tick check and be sure to take extra care to check places like underarms, behind the knees, area where legs meet the torso or otherwise known as personal areas. Ticks love dark, humid and hair.  Check twice and get a good shower.  If you can have a buddy do a check for you.

Call your doctor if you get a fever, feel like you have the flu or get a rash.  Know what the ticks look like.

Prevention is key. Life can be fun and even getting ready for life can be made fun. Life is a great adventure and a little preparation can make the adventure last a long time!

So, now you know that, come learn more at any of the events I am doing this year.

Most are confirmed, but check in to be certain!

Event Calendar for 2017:

February 4th First Saturday Downtown Frederick

The Common Market:

March 8th 6:30 pm

March 22nd 6:30pm

March 29th 6:30 pm

Illuminate Frederick : Confirmed!

Sunday April 23rd, 11 am – 6 pm

FSK

http://illuminatefrederick.com/

Festival of Legends:

April 29th and 30th, 2017

Optimist Farm, Apex NC

Spring Ridge Spring Fling:

May 12th Spring Ridge Elementary School.th? 5:30- 8:00pm.

Maryland Faerie Festival:

 June 10 and 11, 2017
2564 Silver Rd.
Darlington, MD 21034

http://marylandfaeriefestival.org/

Bless The Woods

June 9 – 11        Fairplay MD

Frederick Pride Day

June 24, 2017: 11am-7pm
Carroll Creek Linear Park,
Downtown Frederick MD (between Market & Carroll Streets)

2016 Photos Here; 6,000 attendees

Event Details...

Illuminate “The Beach” Delaware: August 13

 

Illuminate Columbia: September 12th


PPD Event: Saturday, September 16, 2017
Location: The Unitarian Universalist Congregation of Frederick, 4880 Elmer Derr Road Frederick, MD 21703
Links: Website : Facebook
Email: frederickpaganpride@gmail.com

Pagan Pride NC?

Nancy’s Event: Oct. 7 &8

 

Illuminate Frederick:  October 22

Illuminate Annapolis: November 12th

 

Are Essential Oils Supportive for healing?

Oils and enhancing healing for Lyme:

There was a time when breathing in the fragrance of camphor and eucalyptus was an essential thing in Grandma’s house in order to relieve the symptoms of a cold. Who can say whether it was the comfort of the steam or the essential oils from the plants themselves that felt so healing.

In the same token, there are essential oils that have been said to be very beneficial in the healing journey of Lyme disease. The familiar scent of Lavender is very soothing and calming. Can this be helpful? I do believe so. Lavender itself has been used for centuries by ancient cultures as a muscle relaxant, sleep aide and for its other healing properties.

With Lyme disease having so many different presentations in myriads of patients, Oils can be beneficial to soothe patients where mostly needed. One person may have heart fluxes and need something calming in the environment they are in like Lavender and Roman Chamomile. Another person may have focus issues and want the smell of Wild Orange or Peppermint in the air.

There have been some studies that have shown that healing can occur when oils have been introduced as a support modality. In other research specific oils have been found to bind to bio films and dissolve them.* Can this be beneficial in some circumstances? Surely it can be.

I find it fascinating that essential oils have been used in different cultures since the BCE eras. With that kind of staying power and dependability it makes me wonder what other wonderful things essential oils can do. In my own home I have used certain oils in a diffuser to give me comfort during a stressing time or freshen my living environment. It is proven that certain pests are repelled by mint which means they will not be bringing unwanted vectors into the house. (Like ticks or mosquitoes).

As a Head Gardener for a museum, I also understood from my research and education that Comfrey was used to reduce inflammation and was kept in most Colonial gardens as part of the family pharmacy. I do believe that there are other plants whose essences have been scientifically proven to be beneficial.

If ever there were a time to make use of all of God’s pharmacy, now is the time. When going for a protocol for healing Lyme consider having oils support you. If you want to know more, please contact me at candowithlyme2@gmail.com or contact your local doTerra representative. doTerra’s grade quality is of the purest grade I know of and the reps are very knowledgeable.

(do Terra is only one company that sells oils of this nature. If there is a company you prefer, fantastic! Definitely check them out and make sure whatever company you go with has a pure grade oils measured from an outside source.)

 *http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3346404/

 Disclaimer: Christina Murphy and Can Do With Lyme LLC is not a medical organization, and they do not purport to provide medical advice. The information herein is provided in good faith for general information purposes only. We do not make any guarantee of the reliability or accuracy of this information as there is new information being discovered on a daily basis. Any action that you take upon the information here is strictly at your own discretion and we will not be liable for any losses or damages in connection with the use of our information.

This Holiday Season

This Holiday Season

Hello everyone. It has been a very event filled fall and the adventures have not stopped yet!

We are now heading into the Holiday season and whether you celebrate Christmas, Yule, Kwanzaa or Chanukah, it can get overwhelming at times.

I have written before about how having an invisible disease is hard. It is especially difficult during the Holidays because people around you may forget you are sick and remember how you used to be.

Expectations of yourself can be an emotional roller coaster and create an added stress that is not necessary. Here are some tips to not lose yourself to the Holiday stresses:

1.       Be kind to yourself.

2.       Set boundaries for yourself

3.       Set times for you to rest

4.       Remind others of the things you need to function well.

5.       Turn on some music to bring you joy. Create a playlist for each emotion. It will relieve your stress. Listen to the music so it can let the emotion flow out of you

So, what do you listen to?

Do you have a favorite playlist?  Share your playlist with us, let’s have fun discussing this!

Here’s to hoping we all have a great holiday and fill our lives with love and music!

PS   I want to thank Ric for his brilliant input for this newsletter!

Wondering Times

Wondering times.

This past Sunday I did the “Lyme in Winter” event with Julia Lockett.  It was fun and noisy and lots of information was shared. Sending thanks to the crew at Dublin Roasters Coffee shop and Julia for all you do.

During the past few hours, my phone has been charging and not been very cooperative as far as communication.  I have been wondering what if we had to go back to the way things were before cell phones and other technology that we enjoy so much.

Being a Lyme patient is very much like being separated from conveniences that we think are necessary or that we take for granted. Neurological difficulties and cognitive difficulties take away ones’ abilities to communicate or move like everyone else. It is, at times, unnoticeable, but it is still there.

There is a wondering on the part of the Lyme sufferer of how to adapt to this, (which can branch off to other thoughts where you lose the original thought). Also, the caregiver or family wonders what is going on with the person who has Lyme and contemplates on how to help or navigate life in order to be there for them.

It is hard sometimes and leads to frustration on all sides.  So, this Thanksgiving remember that your family member who has Lyme is not the same anymore. For those who have Lyme, trust that the people around you have no idea what you are going through and love them. I hope all of you have a wonderful Thanksgiving. If you need any help with recipes or product suggestions for food, message me at candowithlyme2@gmail.com. I have favorite stuff and recipes I use and I am happy to share.

Happy Thanksgiving everyone,

Christina

Learning Spoons

 

Learning Spoons

One of the hardest things people with chronic or complex illnesses learn is how to work within their abilities.

When we have a good day or there is a long backlog of needs, so we push our boundaries. We then end up exhausted, and back at square one.

This is one of my most difficult challenges on a daily basis. I feel fairly well, so I go to my job, then to the store and keep running until I cannot move. Guess what happens by dinner time? I end up needing help or just asking someone else to make it.

A very good friend told me about the spoon theory.

You have 12 spoons in a day, each representing the energy it takes to do a task.

http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

 

Example: For me, (each person has different levels of energy assigned to tasks), one spoon can be getting out of bed. On a good day, one spoon can be getting out of bed and getting dressed. You can see where this is going.  By the time I get off work, I might have one or two spoons left for the day.

Lately, I have been forgetting to keep track of spoons. This has led to exhaustion and my body becoming overly stressed. I have decided after having a hectic two weeks to get back to self-care and work within my abilities.  This means counting my spoons and communicating with my family about how things are going.

When caring for yourself, be honest about what hurts, what works and what you need to be healthy or healing. Communicate to those around you about these things and set up a system to succeed. It will make you happier and when you are happy, it is contagious!

Just because we live in a fast paced world does not mean that you have to overexert yourself. Be mindful of your own limits. Even small seemingly innocuous things such as electronics and smart phones can be draining. Maybe you need to turn them off to conserve your spoons. Explore and learn your own boundaries to keep yourself healthy. Be mindful of both your physical and mental states as you navigate your life. If something is taking too many spoons, budget your energy accordingly. By recognizing our new boundaries, we can live each day to the fullest without over exertion.

Cheers,

Christina

Support Groups: Helping deal with pain, stress, fear, loneliness and isolation.

I had a different newsletter for this week but found myself writing this today.

As I sit here waiting for people to come to the coffee shop to talk about Lyme, I think of days I have sat alone or had a filled room.

 I am here every Wednesday and invite anyone who is able to come, to come and talk. No topic is too big or small and all of it matters.

We are all affected by Lyme disease one way or another.  It can be by being a patient, being a caregiver, parent, family member or the physician who treats Lyme patients Every aspect of this disease is important to talk about especially when so few people will talk about it.

So many times I have offered information about Lyme to people who quickly say, “had that” and they quickly walk away like they can’t get away fast enough. I am left stunned.  It really makes me question myself.  Is being available every week for people to get answers to questions or to share information a good thing? Am I doing the right thing?

Yes. It is important. We all need to share what we know, what we have experienced so that others that come after us may learn. Lyme disease has been prevalent for many years. It is finally getting a foot hold of attention after forty some years of struggling patients and groups fighting like crazy.

The more these groups band together and become united, the better it will be. That comes back to support. Supporting each other, supporting people who feel they are alone. Joining in conversation with each other. Gathering together to talk about Lyme and its’ effects on home, work and family.

Let’s talk, comfort each other, give each other information, be informed and find those that feel isolated and let them know they are not alone. Let’s start getting mission statements in our churches to help the housebound Lyme patients and show them they are not forgotten. They are loved, not shunned.

Let us help each other to deal with the pain, stress, depression, fear, the sense of loneliness and isolation that this disease causes.

Much love,

Christina

Updates

As this page is for my friends and family, I am going to update folks on projects I am working on.

I am attempting to do better marketing on Embracing Healing. I know I have not been fantastic at marketing, but I am giving it a go.

Next book on the list is in the works. More news later.

Working on a curriculum / syllabus with dear friend Kate Smith Ridgely for Lyme Caretaker certification. We hope to have that ready soon.

Submitting a syllabus to FCC for Lyme Education again.

Starting soon, I will be back to sporting oil education.

So much to do , so little time. It will all happen. Check here or on the Can Do With Lyme LLC page .

My work is my passion. Anytime you feel I have done well, please leave a comment. The more folks read how you feel about my abilities, the more likely I will stay in business.

Thank you all and have a fantastic holiday weekend.

Tick Testing information

Tick Testing:

Hello All;

As of this month, my certification to do tick testing has expired. The place to renew this has shut down so I will be pursuing this to renew my certification.

In the meantime, below are places where you can send your ticks to be tested. This is very important. To save your ticks, put them between two pieces of tape and then attach to a piece of paper for the techs doing the testing.

With the results, you can be certain to get the treatment you need from your doctor. Remember to request your doctor to use the protocols chosen by The National Guideline Clearinghouse. http://www.guideline.gov/search/search.aspx?term=lyme .

As always, be healthy and prevent Lyme by doing tick checks often.

 

FREE tick testing is available from the Bay Area Lyme Foundation
http://www.bayarealyme.org/lyme-disease-prevention/tick-testing/

Laboratories that test tick-borne pathogens:

Analytical Services, Inc.
Attn: Tick Testing
130 Allen Brook Lane
Williston, VT 05495
(800) 723-4432
www.analyticalservices.com

Clongen Laboratories Tick Testing Service 1
211 Perry Pkwy #6
Gaithersburg, MD 20877
(301) 916-0173
www.clongen.com

Connecticut Pathology Laboratories
1320 Main St., Ste 24
Willimantic, CT 06226
(860) 450-1823

Imugen
315 Norwood Park South
Norwood, MA 02062
(800) 246-8436
www.imugen.com

UMass Extension Diagnostic Lab Tick Assessment
Holdsworth Natural Resources Center
160 Holdsworth Way, University of Massachusetts
Tick-Borne Disease Diagnostics
Amherst, MA 01003
(413) 545-4800
http://ag.umass.edu/services/tick-borne-disease-diagnostics

IGenex
795 San Antonio Rd
Palo Alto, CA 94303
(800) 832-3200
www.igenex.com

 

Additional Tick Testing information:
http://www.tickencounter.org/tick_testing

 

 

 

Disclaimer

Any information provided is for the reader’s own evaluation and is not offered as and should not be considered medical advice. A licensed physician should always be consulted when considering medical decisions and nothing herein may be used in place of advice from your personal physician or other healthcare professional. Links to other sites are provided for ease of research only. Information on those sites is the product of the website author and represents the opinion of those who publish the sites and does not necessarily reflect the opinion or judgement of Can Do With Lyme LLC.

How many species of Lyme / Borrelia are there?

How many species of Lyme / Borrelia are there?

So we know that Borrelia Burgdorferi is a genus of bacteria.

 What do we not know?

It is said there are 100 known species of Borrelia.

 In my research so far, there are 36 known species of Borrelia that have been found since French Biologist Aimee Borrel, (1867–1936), brought this bacterium strain to the forefront.  This bacterium was found in ticks and lice.

Here are the species and the dates found.

•             Borrelia afzelii Canica et al. 1994

•             Borrelia americana Rudenko et al. 2010

•             Borrelia andersonii ♠ Marconi et al. 1995

•             Borrelia anserina ♦ (Sakharoff 1891) Bergey et al. 1925

•             Borrelia baltazardii ♦ (ex Karimi et al. 1979) Karimi et al. 1983

•             Borrelia bavariensis ♠ Margos et al. 2009

•             Borrelia bissettii ♠ Postic et al. 1998

•             Borrelia brasiliensis ♦ Davis 1952

•             Borrelia burgdorferi Johnson et al. 1984 emend. Baranton et al. 1992 (Lyme disease spirochete)

•             Borrelia californiensis ♠ Postic et al. 2007

•             Borrelia carolinensis Rudenko et al. 2011

•             Borrelia caucasica ♦ (Kandelaki 1945) Davis 1957

•             Borrelia coriaceae Johnson et al. 1987

•             Borrelia crocidurae ♦ (Leger 1917) Davis 1957

•             Borrelia dugesii ♦ (Mazzotti 1949) Davis 1957

•             Borrelia duttonii ♦ (Novy and Knapp 1906) Bergey et al. 1925

•             Borrelia garinii Baranton et al. 1992

•             Borrelia graingeri ♦ (Heisch 1953) Davis 1957

•             Borrelia harveyi ♦ (Garnham 1947) Davis 1948

•             Borrelia hermsii ♦ (Davis 1942) Steinhaus 1946

•             Borrelia hispanica ♦ (de Buen 1926) Steinhaus 1946

•             Borrelia japonica Kawabata et al. 1994

•             Borrelia kurtenbachii Margos et al. 2010

•             Borrelia latyschewii ♦ (Sofiev 1941) Davis 1948

•             Borrelia lonestari ♠ Barbour et al. 1996

•             Borrelia lusitaniae Le Fleche et al. 1997

•             Borrelia mazzottii ♦ Davis 1956

•             Borrelia merionesi ♠ Hougen 1974

•             Borrelia microti ♠

•             Borrelia miyamotoi Fukunaga et al. 1995

•             Borrelia parkeri ♦ (Davis 1942) Steinhaus 1946

•             Borrelia persica ♦ (Dschunkowsky 1913) Steinhaus 1946

•             Borrelia queenslandica PopeJG et. al. 1962

•             Borrelia recurrentis ♦ (Lebert 1874) Bergey et al. 1925

•             Borrelia sinica Masuzawa et al. 2001

•             Borrelia spielmanii Richter et al. 2006

•             Borrelia tanukii Fukunaga et al. 1997

•             Borrelia theileri ♦ (Laveran 1903) Bergey et al. 1925

•             Borrelia tillae ♦ Zumpt and Organ 1961

•             Borrelia turcica Güner et al. 2004

•             Borrelia turdi Fukunaga et al. 1997

•             Borrelia turicatae ♦ (Brumpt 1933) Steinhaus 1946

•             Borrelia valaisiana Wang et al. 1997

•             Borrelia venezuelensis ♦ (Brumpt 1921) Brumpt 1922

•             Borrelia vincentii ♥

•             Candidatus Borrelia texasensis Lin et al. 2005

There is now new species found. One is called Borrelia Burgdorferi sensu lato which was discovered in Japan and in February of 2016 Borrelia Mayorelii was found in Wisconsin and Michigan.

The Borrelia Sansu Lato is only found in Japan. I have not found in the study what the symptoms are from this species of bacteria.

 

Borrelia Mayorii has a rash that can appear more spread out and apparently adds nausea and vomiting to the list of typical Lyme symptoms, which include fever, headache and neck pain. B. mayonii patients also had a higher-than-expected concentration of bacteria in their blood.  This information is from Dr. Pratt of the Mayo clinic.

 

The list can be found on Wikipedia and the other two are from ScienceDirect.com and TheNewYorkTimes.com.

With this information, please try to remember that ticks are not the only vector carrying the Borrelia bacteria. It can be contracted from any blood sucking insect. (and in the South West a type of lizard).

The more you know the more you can prevent getting Lyme disease.